Advocacy Ruts (9/04)
Do you want to learn about CFS advocacy? This
series takes a look at common advocacy strategies for CFS. Then it
asks the question: are these advocacy strategies effective?
If it once was assumed better left unsaid, this series dared to say it!
One of the most unique and challenging series on the CFS Report.
This series is certain to stimulate debate, discussion, and reflection
on advocacy strategies.
Introduction - Why is it important to reexamine our advocacy
strategies for their effectiveness.
Integration Advocacy - What is integration advocacy? Why is it
popular? And, where will integration advocacy lead? Part One
of the series 'Advocacy Ruts' examines what has become one of
the most popular advocacy patterns for CFS.
Advocacy - One of the most controversial articles on CFS advocacy
written to date, M.E. advocacy is the series that provoked a new
discussion on a passionate topic! This is the piece that
said what couldn't be said. Read it!
Political Advocacy - Political advocacy is the most common
form of advocacy for most issues. But, will requests for more government funding defeat CFS?
op/ed encourages the CFS community to be realistic about the pitfalls of political
advocacy. As long as public attitudes toward CFS remain uneducated and
apathetic, public efforts will reflect those attitudes. Our political
requests must be specific and attached to a realistic sense of what
"more government funding" could entail.
- What will it take for us to build momentum against CFS? What is modern
advocacy? Read the conclusion of the popular 'Advocacy Ruts' series.
The Power of a Personal Story
What is the most underutilized weapon in defeating public apathy
toward CFS? Our stories! This series looks at the impact that personal
stories have played in helping defeat public apathy toward a variety of
illnesses. Then, advice is given on how the CFS community can best make
use of this powerful tool. This series is a great series for local
support groups. (5-2003)
Part 1 - Introduction - Personal stories are often the best way to
change the public's hearts and minds.
Part 2 - The Jim Eisenreich Story - A Homerun for Tourettes Syndrome.
What appeared to be a lose all situation for Jim Eisenreich turned out
to be the story that educated me on the cost of Tourettes. Could stories
of CFS do the same?
- Ryan White - AIDS hits middle America - No advocacy community has
been more savvy about using personal stories than the AIDS community.
Ryan White's story got middle America involved in defeating AIDS.
Part 4 - Using
Personal Stories to Defeat CFS - What can we do to make personal
stories work for us? The last part of the series focuses on strategy and
effectively using personal stories to combat CFS.